Congenital heart disease is survivable, manageable, yet in the routine years between infancy and adulthood, sometimes forgettable. The Adult Congenital Heart Association is a resource, advocate and knowledge base for everyone affected.
Congenital heart disease is a type of defect in one or more structures of the heart or blood vessels that occur before birth. The heart structures, or vessels, do not form as they should during pregnancy, while the fetus is developing in the uterus.
In the United States, there are now more people over the age of 20 with congenital heart disease (CHD) than under that age. The population of adult CHD patients is growing at a rate of 5% per year, with 1 to 1.3 million people in the U.S. having CHD as adults—the most common congenital defect in the nation.Cited by: 19.